What I Actually Do – Day in the life of a Crohnie

Last week when I was having my 10am trip to the sick bowl, I was watching an interview, or rather a ‘debate’ on This Morning involving two women. One woman was a full time stay at home mom and the other a 9 – 5 working mother, and as much as I applaud the efforts of the working mom she caused a lot of uproar with branding the other as ‘lazy’ and questioning what exactly stay at home mom’s do.
This is a close debate to me because very often some ignorant person slides into my dm’s to ask me exactly ‘what I do?’ and yes I am a self proclaimed lazy arse, but I also work hard and do not do “nothing.” After talking to a lot of other Crohn’s sufferers I find myself telling them to not feel guilty about doing nothing or achieving nothing more than a 6 hour nap on a day they aren’t feeling great and yet I feel myself having to justify what exactly I do still.


So first off I’m going to state that I don’t feel I have to justify myself but there are a lot of you who are non-maliciously, genuinely interested in what a week is like for myself as a Crohn’s sufferer, work from home, M.E diagnosed, pregnant, student.
Already, my illnesses are a type of job, they are something I live with everyday and they can determine the path I go down in my life. A year and a half ago I gave up work to focus on my health and have not returned to a career since, and I do not regret that, nor do I feel like I am lazy or a ‘doll scrounger’ because of my choice to focus on being mentally and physically well over the 9-5 grind. I work hard to do normal tasks some days, sometimes getting dressed is an exhausting task or even a walk with Luna (despite the fact she’s pop-eye on a leash) can tire me out for the entire day and with the build up of my exhaustion comes a flare up, with a flare up comes a debilitating change in life, days in hospital and watching loved ones suffer the thought of what will happen to me this time. So when I say I do not work full time or have a ‘proper career’ I am not ashamed or feel guilty for being a stay at home person and any other chronic illness sufferer should not feel guilty that they too cannot work or cannot pay into the state like many other people in society can and do.
With that said this is what an AVERAGE day (there are obviously days I lie around in a vegetative state with one arm round my sick bowl and the other in a pic n mix tub watching Netflix) looks like for me.0001
I wake up when my natural body clock wakes me up, because if I don’t, boy do I know about it. On the days I have to set an alarm I fight a battle of morning sickness and body fatigue as my digestive system hasn’t clocked in yet, my body has awoken before my functions have and so they work at dysfunctional time differences. So majority of the time I let myself wake up naturally to avoid any premature trips to the toilet and alleviate the chances of a midday nap. I go down to luna, who has already attempted her prison breaks and escapology routines in which she somehow manages to escape her cage even with cable ties and a padlock on (I don’t even know how she does it but I can earn big bucks from her skills, Houdini is shaking in his grave). Feed her some goop whilst trying not to gag and then have a cup of tea, or on a bad sickness day, a cup of boiled water (wild, I know) and then run to the toilet and sick it all back up again…
“Welcome to the second trimester” they said… “Morning sickness will be going now” they said…
Well my stomach and my toilet disagree. So once ive gotten my vomiting out the way I go get dressed, which I think is the actual hardest part of the day. It’s the part where you mentally make the decision that your day is beginning and you mean business, despite feeling like its time to go back to bed already.
0003If it’s a work from home kinda day, then ill be lucky to be arsed to do my makeup cause that is commitment usually only saved for leaving the house. Joggers on, messy bun (that looks more like a sparse turd on my head because my hair is too thin to do a proper messy bun) and eyebrow-less. Our post lady (despite being half blind and unable to tell what number our house actually is) delivers my ‘blogger mail’ (again this is NOT something that happens EVERYDAY) with the same astonished expression that Michael Jackson really hasn’t died and is living at number 11 in her home town when I greet her. I spend a couple hours doing the house work and talking to the dog like a mad woman who has had no human contact in years whilst debuting my new album at top volume and a well-choreographed cordless vacuum dance to accompany it. Then by lunch time I have finished boring mundane chores and sit down to go through my emails. I argue with a few collaborators about how I deserve to be paid for advertising their brand or products and write up briefs or ‘pitches’ to them with my set fee in the hope they accept and delete all the spam about how I need a penis enlargement for my non-existent dick. Then if I have Instagram or blogging jobs to do I try to do them whilst its still light outside, setting up the brands product in some shitty layout and blab on about what I think of them in painstakingly unnecessary detail that the company are happy with. Although this proves to be a lot harder than anticipated because there are only so many flat lays or backgrounds I can use for variety within the four walls of my house (and yknow, eyebrows off means I ain’t leaving the house unless for emergencies).
If I don’t have any blogging or insta jobs to complete then I log onto my student account and do some of my uni work, or rather, I pretend im doing uni work but actually got side tracked by the latest serial killer documentary that I have on in the background and then come deadline day I cry into my laptop until ive finished and then repeat the whole cycle again come next assignment. The great thing about Open uni is its so flexible, if im having an ‘ill’ day, where I don’t get anything done, I’m not reprimanded or lectured, instead offered extra support should I want it. You get out exactly what you put in, and there’s no in-between. If I only do an hour a week of uni then I’m not in trouble for missing online lectures or activities, I just notice a decrease on my own ability come the next marked assignment. You are given your assignment due dates for the whole year when you start so there isn’t really any excuse as to why I could miss my August 2018 deadline because I knew it was coming from October 2017. Still, im a pro at leaving it to the last minute.
When I’ve finished work there is usually only an hour or so before john gets back from 0004work so I usually just chill, watch some shitty American tv show and sleep because by now im exhausted. Im exhausted every hour of the day thanks to Crohn’s but when my tasks are done that’s when I reward myself with a nap (it’s the best part of everyday). When john gets home and ive awoken like someone having a nightmare in a horror film, wondering what year it is and where ive been for the last decade, we take luna out for a run. She has developed a keen talent of finding any way possible to get into the River Trent and swims around for a little bit providing the current isn’t strong. If the current is strong, I turn into a crazed mother running after her screaming like she’s the kittens in the ‘Aristocats’ about to be swept away but she never is because y’know, shes a dog, shes a good swimmer. When ive finished having heart palpitations and accusing john of not caring or getting in the river after her, we head home and argue about what we want for tea. The system is fairly simple, ‘Did we have pasta yesterday?’ ‘No?’ ‘Pasta it is’. If the answer is yes its, ‘Okay think of something today and we’ll have pasta tomorrow’. I cook tea and we watch some shit tv before retiring like an old age pensioner to bed at like 10pm where I kid myself into thinking im going to finish my book tonight but instead end up falling asleep to family guy.
Like I said previously, days differ, sometimes I meet up with friends for a drink, sometimes I have to go to venues for various things, sometimes I am at doctors or hospital appointments or tests, some days I check up on the Etsy shop (full feature coming soon) and some days I do absolutely nothing.
So yeah, I do do ‘nothing’ but I don’t do ‘nothing’ at the same time and I’m not ashamed to not have a full time proper job. Of course on a bad day I think badly of myself, chastise myself for not being stronger or having the motivation to push through and get a 9-5 job and feel guilty that some people don’t have the choice but to work. But everybody has their own guilt battles, mom guilt, breaking a diet guilt, work guilt, not going to the gym guilt, spending money on irrelevant things guilt. It’s a natural part of mental health to feel guilty for things we have or do that we know others may not be as fortunate, but it doesn’t mean we are in the wrong. If you have a chronic illness and cannot work, if you are mentally effected by work or if ‘work’ is deteriorating your own health, there is no shame and nothing wrong with taking the back step. It doesn’t make you ‘lazy’ or a ‘doll scrounger’ or a ‘freeloader.’
In July I will be adding to my list of jobs, I will be a full time stay-at-home mom, and I have no shame in being just that. My life aspiration was to be a mother. So I am proud to be able to achieve that and focus all my energy into being the best full time mom.

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*As you may have noticed some of the photography is 100% better than any of my own, including the main header photo. These photos were taken and are owned by HND Photography student, Hayley Leaver. Click on any of her photos (Watermarked) to check out more of her work and show support. More of her images will be featured in upcoming posts.

xx

 

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